11.19.2017 update

Maggie gets her break! We’re holding off her chemo round until Monday week – 11/27. This should give her gut the time it needs to heal before hitting it again hard with drugs. Maggie and I are leaving early tomorrow for a quick overnight trip to...

11.14.2017 update

Maggie is continuing to improve from her latest bout of C-Diff. She started a course of Vancomycin last Monday night after our visit to the clinic with fever and other symptoms. By Thursday of last week, we thought she had turned the corner but Friday saw her, once...

11.08.2017 update

Anyone else having a hard time believing it’s November??? Anyway, I’m over due for a longer, detailed update, so here it is. If you just want the takeaway…. Maggie is much better after her a round of chemo with some annoying side effects and an...

10.30.2017 update

This photo describes our day: Practically Perfect in Every Way. Maggie’s PET scan results show shrinkage and lower metabolic activity in all affected areas – liver, lymph nodes, lungs, and sternum. I have been accused (by Maggie) of allowing my caution and...

10.24.2017 update

Maggie was discharged this afternoon – we’re sleeping in our own beds tonight. Cultures confirmed a UTI. It was not as severe as the last infection (this summer) but was closely watched due to the potential for trouble in the setting of falling blood...

10.21.2017 update

I had hoped to share a totally upbeat post about how well Maggie is doing and how much fun she had at her fall retreat (TBC college girls). She did get to go, BUT…. started running fever yesterday afternoon. We knew she had wonderful nurses helping her –...

09.15.2017

No news is generally good news. Maggie is been enjoying a slightly longer break between rounds – we felt she deserved it and could use extra time to recover from the last one. We’ve been busy doing some “normal”. All good things come to an end,...

09.28.2017 update

After a very long day in the clinic, Maggie has been admitted to 3C for chemo. She was cleared (her counts were strong) this morning, and the chemo was started early afternoon. Normally she will get two drugs in the clinic then move to the floor for the other two. But...

09.24.2017 update

It’s past time for an update… Maggie is opting to wait until Thursday for her next chemo admission. We had blood work at the clinic last Wednesday, and all her levels were solid. Platelets didn’t seem to take as big a hit from the last chemo infusion...

09.11.2017 update

Maggie and I came to Jackson for a clinic appointment and possible admission this morning. She brought enough platelets with her this time and was cleared for chemo and admission. She’s still getting the Folfiri regimen, but this time we’re switching to...

09.07.2017 update

No admission today. Maggie’s platelets did not meet the 100,000 threshold for a chemo infusion. Her level was 92,000. This suppression is caused by one or two of her chemo drugs. Her body needs a little more time to recover, so we are home for the weekend....

09.06.2017 update

Maggie and I will be leaving early for an 8:00 am appointment at the CCC. If her counts look good, she will be admitted for her next round of chemo. If all goes according to plan, we’ll stay through Saturday afternoon. I’ll update as quickly as I can to...

08.28.2017 update

Quick between round update: Maggie is feeling tired but good. She was able to drive to church Sunday – first time she’s been behind the wheel in several months. She (and her parents) wanted to make sure she was tolerating all her meds well and over the...

08.22.2017 updat

As promised, I’m adding an update to first let you know Maggie’s counts were solid – platelets were up – so we are infusing. We were admitted yesterday afternoon, about eclipse time. She is tolerating chemo extremely well with the main side...

08.20.2017 update

Our vacation drew to a magical close today and we are turning our focus back to treatment. But before we do, I’ll mention our trip briefly with the promise of a complete post later in the week. Maggie chose the location, fittingly, and you can guess where we...

08.14.2017 update

Maggie, Phil and I were in the Children’s Cancer Clinic first thing this morning to hear results from the PET scan from Friday afternoon. When Dr. Herrington (filling in for a traveling Dr. Collier) said the words, “Your scans are stable,” you could...

08.10.2017 update

After a few days of rest following her last chemo admission, Maggie has surprised us with her strength and appetite. She was even able to attend church Sunday for the first time in several months. She is sleeping better than she has in recent memory and is able to...

08.02.2017 update

Wednesday night update from Batson: Maggie was able to get chemo starting in the clinic Monday morning and was moved to the floor mid-infusion that afternoon. Monday was a pretty rough day – she had mild anaphylaxis again with chemo #2, Iranotecan, requiring a...

07.30.2017 update

We’ve had a blessedly uneventful week. Maggie has rested at home – no complications to propel us back to Batson. She has recovered nicely from the C-Diff and seems to be getting stronger. We’re working with Dr. Rippel, her pediatric GI doctor, on an...

07.22.2017 update

Maggie is much better tonight. The number of trips to the bathroom has dropped exponentially – Praise the Lord. She’s still tired and will need more time to recover, but, if all goes well, we’ll leave for home in the morning. She was given two units...