03.17.2018

After leaving MDA Thursday, we were secure in our direction for the clinical trial. If only all parties had been on board, we might have avoided another emotional roller coaster.  I received an email Monday morning from the study coordinator with news that our...

03.10.2018 update

We’re home from Houston (as of noon today), worn out but content. In a nutshell, we have decided to move forward with a Phase 2 clinical trial we were offered. Maggie will have to pass a screening blood test (the presence of any of several proteins would exclude...

03.03.2018 update

I’m overdue for an update again. It was a tough week for Maggie. It started on a high note. We reported to the clinic Monday morning for an exam, blood work and a targeted therapy infusion. The infusion was uneventful. We heard good news – her CEA was...

02.25.2018 update

Maggie is having a restful end of the week after her 5th round of CDiff last weekend. We suspected she had it about a month ago, had her tested, and had her cleared with a report of negative. She recovered some, but her last round of chemo upset the delicate balance...

02.15.2018 update

We’re overdue for an update – sorry for the delay. Maggie had an infusion of Cetuximab, her targeted therapy, in the clinic on Tuesday. We had decided to leave off the standard Folfiri drugs to give her gut more time to bounce back. She is continuing to...

02.08.2018 update

We have encouraging news to share tonight. Yesterday morning I sent a message to Maggie’s team at MD Anderson to let them know we are ready to have Maggie re-evaluated for inclusion in a clinical trial. Several messages back in forth over the next few hours...

02.04.2016 update

We wanted to offer a quick update on Maggie’s post-chemo recovery. She’s doing MUCH better. Her tummy is settling down, her appetite is ok, and, as I write, she’s straightening her room. We have a quiet week ahead (we hope) with plenty of rest. Next...

01.31.2018 update

Maggie was admitted Monday morning for chemo as planned. She has experienced a prolonged and pronounced level of diarrhea throughout the 48 hour infusion. The usual protocol is to NOT stop diarrhea as this is the body’s response to the toxicity of the chemo...

01.28.2018 update

First, the DNow report: Friday afternoon at the time Maggie needed to be packing and preparing to go, she felt nauseated and weak. She went to bed, hoping to rest awhile and go later. By evening, she decided to stay home for the night. This would prove to be a wise...

01.24.2018 update

We wanted to give a quick mid-cycle update to let you know how Maggie is doing and how prayers – yours and ours – are being answered. Maggie has been staying close to home (away from germs) for most of the time since her last infusion. She has had a...

01.14.2018 update

Maggie knocked out round # 51 (total) of chemo yesterday afternoon and was discharged shortly after. We made it home in time for late supper and catch-up time with Phil, Molly, and, of course, Meg and Max before collapsing in our own beds. Molly has taken on a new...

01.10.2018 update

We got a call today from Dr. Collier with Maggie’s PET scan report. It’s a mixed bag. The chest area – lungs, sternum – is stable when compared to the last scan. However, the liver showed a noticeable increase in metabolic activity. This...

01.08.2017 update

Maggie will be having her PET scan tomorrow from 12:00 – 2:00 in Jackson. Prep day is tough on this girl! She has to eat a low carb/high protein diet, and she loves carbs like her mother does. She’s managed it well with the promise of a good lunch tomorrow...

12.30.2017 Update – God’s Way

Maggie and I are home after a long last day of a three day admission. The chemo infusion was uneventful – even a bit better than most in terms of discomfort (nausea, skin irritation). She was due for her pentamidine (normally given via breathing treatment) which...

12.27.2017 update

We’ve had a peaceful and uneventful Christmas. Maggie has remained germ-free and strong. She is still having occasional back pain from an undetermined source (most likely liver), but it responds well to pain meds. After her next chemo round, it will be time for...

12.13.2017 update

Well if we can keep Maggie in town, we’ll try fit another chemo admission around her busy schedule. After our whirlwind weekend in Jackson for Batson celebration and fundraising, Maggie and Molly took a trip to Nashville for a concert and plenty of cousin time...

12.03.2017 Report

This post will be more of a report than an update. Maggie is doing well. She recovered from last week’s infusion quickly and was able to enjoy a big weekend. Her next admission for chemo is scheduled for Thursday, Dec. 14th. I’ll post a reminder as we draw...

11.29.2017 update

Chemo Round 48 is in the books, and we’re resting tonight at home. This admission was uneventful (a good thing) but not the least one plagued by side effects. Maggie had a persistent nausea the entire infusion. We’re thankful this one is finished so the...

11.26.2017 update

Maggie has an 8:00 appointment at the CCC for probable admission for chemo. If all goes well this should last until Wednesday afternoon when we can come home. She’s feeling ok – not sick but not real energetic. This may have to do with appetite/gut issues....

Thanksgiving 2017

Sometimes, the hardest place to go is back. To the setting of our darkest hour and deepest hurt. Mercy calls us back for healing – to complete its job. And with such thoughts ruminating in my heart and mind Monday, Maggie and I loaded the car and traveled...