03.24.2018 update

We're home (as of 6:30 pm today). Maggie's treatment yesterday - a three hour infusion of the trial drug - was uneventful. She seemed to tolerate it well without major side effects. She's tired and a bit nauseated after the long week. She's also experiencing some...

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03.21.2018 update

Maggie is in. We received positive confirmation yesterday from lab tests that she is fully qualified for the clinical trial. She underwent the required biopsy for collection of a liver tumor sample prior to the start of her treatment today and handled it like the...

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03.17.2018

After leaving MDA Thursday, we were secure in our direction for the clinical trial. If only all parties had been on board, we might have avoided another emotional roller coaster.  I received an email Monday morning from the study coordinator with news that our...

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03.10.2018 update

We're home from Houston (as of noon today), worn out but content. In a nutshell, we have decided to move forward with a Phase 2 clinical trial we were offered. Maggie will have to pass a screening blood test (the presence of any of several proteins would exclude her...

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03.03.2018 update

I'm overdue for an update again. It was a tough week for Maggie. It started on a high note. We reported to the clinic Monday morning for an exam, blood work and a targeted therapy infusion. The infusion was uneventful. We heard good news - her CEA was stable (or ever...

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02.25.2018 update

Maggie is having a restful end of the week after her 5th round of CDiff last weekend. We suspected she had it about a month ago, had her tested, and had her cleared with a report of negative. She recovered some, but her last round of chemo upset the delicate balance...

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02.15.2018 update

We're overdue for an update - sorry for the delay. Maggie had an infusion of Cetuximab, her targeted therapy, in the clinic on Tuesday. We had decided to leave off the standard Folfiri drugs to give her gut more time to bounce back. She is continuing to have tummy...

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02.08.2018 update

We have encouraging news to share tonight. Yesterday morning I sent a message to Maggie's team at MD Anderson to let them know we are ready to have Maggie re-evaluated for inclusion in a clinical trial. Several messages back in forth over the next few hours resulted...

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02.04.2016 update

We wanted to offer a quick update on Maggie's post-chemo recovery. She's doing MUCH better. Her tummy is settling down, her appetite is ok, and, as I write, she's straightening her room. We have a quiet week ahead (we hope) with plenty of rest. Next Monday, the 12th,...

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01.31.2018 update

Maggie was admitted Monday morning for chemo as planned. She has experienced a prolonged and pronounced level of diarrhea throughout the 48 hour infusion. The usual protocol is to NOT stop diarrhea as this is the body's response to the toxicity of the chemo drugs and...

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