Another day at Batson:

Maggie continues to fight off the UTI – slowly. With fever spikes last night and this evening, her team decided to switch to a different antibiotic – from Rocephin to Levaquin. We’re hoping this one does the trick. It’s not that she feels overly sick – she’s really been perky at times – we just want to see her fever stay under control and know her body is winning. Apparently when we came to the ER Tuesday night she was just in the beginning stages of sepsis. We’re extremely relieved we overcame the desire to take a wait and see approach at home (we toyed with the idea of delaying until Wednesday morning in order to avoid the adult ER as we learned during our previous ER visit she had aged out of Children’s ER). By getting here when we did, we caught the infection before it became a bigger issue. I think I finally realized the precarious nature of infections at this point when, yesterday morning, we spent an hour or so thinking we might be heading the wrong direction in her response to treatment as her blood pressure started slipping a bit. Quick action by her team to flush a large bolus of fluids, twice, reversed the trend and allowed her to keep her spot on 3C. (Two pumps were working simultaneously at maximum rate to deliver the fluids – a sight to see). Since then, her blood pressure has returned and remained at a healthy level.

We’re planning to stay on through the weekend and knock out the second round of chemo. The original plan was to come Monday morning to the clinic for a two day admission. We like the idea of starting while we’re already settled in a room. If all goes well, we should start chemo Saturday and return home Monday upon completion. Our prayer is for her infection to respond to antibiotics, here pain to remain under control once she gets weaned from the PCA, and for her to receive maximum benefit/minimum side effects from chemo. We should be adding a fourth component to the regimen – one of the targeted therapies or “mab” drugs.

Maggie had one other issue to pop up during this admission. I think I mentioned she had a chest X-ray to nail down the cause of her chest pain on Monday during our scheduled visit for blood counts. The main cause of pain is believed by her team (oncologist and surgeon) to be a 2 cm lung tumor (not a new one but one that recently started growing again) putting pressure on her sternum (at the sight she had her sternotomy for lung resection surgery). She also has a pleural effusion (fluid in the lung) on the right side. It’s not insignificant but is not large enough to contribute much to her discomfort and shortness of breath upon activity. So, after discussion with both doctors, we’ve decided to let this situation work itself out – that’s our hope and prayer. We’ll continue to keep an eye on it for any change in status.

That’s quite a list of prayer requests but we’re up to the task, aren’t we? We continue to be thankful for the staff at Batson. We not only feel Maggie is getting the best care possible. We also enjoy the people. It feels like a family. They anticipate Maggie’s needs, make us laugh, value our input in her care, and place her comfort and healing as the number one priority. God is here among His servants, and we sense that constantly. And God is working in those praying fervently for us. Thank you! I don’t want to wear you out with updates but want to keep you as up to date as possible. I’ll post again with any significant information. Goodnight.